During her toddler’s surgery, a researcher wanted copies of the consent forms she just signed, but the staff was preventing her from getting it. What followed was a maze of refusals, misinformation, and dead ends that exposed just how broken the process really is 👉
During my kid’s surgery, I was denied a copy of my consent form — then sent to a ghost office – The Markup
Help us understand the challenges patients face opting out of voluntary uses of their data, or getting access to their records.